Copy of an email sent tonight:
I'm sorry that I haven't had a chance before now to write about how our appointment at the Endocrine Clinic went on Monday. I think it went great - thank you for all the prayers and phone calls and emails we've gotten this week!
We knew it wouldn't be a hugely informative appointment, but what we did learn was helpful and insightful. They have ordered a bunch of tests that are expected to "rule out" a raft of very low-chance ailments. What they feel is Ellie's biggest threat to her bone density is our numerous trips to the ER due to her Asthma attacks. When we go to the ER, she is put on a round of oral steroids, and one of the side effects of these steroids affects growth and bone density.
We will go to her Pediatrician this week to review her Asthma Treatment Plan and see how we can keep her healthy to avoid trips to the ER and subseqently receive these oral steroids. For now, this is the game plan. It will take months (more than 7) for some of these tests to come back, so the Endocrine Clinic will just see us occaisionally over the next year to monitor Ellie's growth and weight.
Thank you for your continued prayers - please subscribe to my blog if you want more regular updates.
Lori, Mark, Ellie & Will
1 comment:
I'm catching up on your blog posts tonight. I am glad the trip to the Endocrine went well. Do you remember your Dr. or nurses name?
Lots of prayers for everyone and especially Ms. Ellie.
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